Welcome! This is a blog about human being named Fiona, who has Wolf-Hirschhorn Syndrome, and my life as her mother. It was started in 2012, when Fiona turned 1, and ran steadily until Fiona was 6, at which point I signed a contract with Penguin Press to write a book. From here on out, I’ll be blogging sporadically. Here are some adorable, un-updated photos of Fiona. She’s three here:
If you’d like to read the beginning of our story, go here.
If you’re wondering how this deletion came about, here’s the long story. The short story: it was a spontaneous occurrence when Fiona began her life as a microscopic seed of cells.
If you’re curious about the blog’s title, go here.
It’s estimated that Wolf-Hirschhorn Syndrome, or WHS, occurs in 1 out of 50,000 births. You are 250 times more likely to have your house struck by lightning, according to the National Lightning Safety Institute. (But admittedly, the odds of your house getting struck by lightning appear far higher than I had expected!) I once read that there are only a few hundred reported cases of WHS in the country. It is, indeed, a “Rare Genetic Syndrome.”
Who am I? I’m a writer, a teacher, and a first-time mother, and you can find out more about me at my author website, www.heatherkirnlanier.com.