On the Why of Disability

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[Image description: Fiona sitting in row of straw, between two rows of strawberry patches. She’s looking down at her arm. She’s wearing a brown straw hat, and blue-speckled top, purple shorts.]

At first you’d think, as I have thought, it’s because she’s missing a part of her chromosome. And yes, that’s true. But also, no, it’s not because she’s missing a part of her chromosome. It’s not because chromosomes are made of hundreds of genes. It’s not because of her thin cerebellum, or because our world is heliocentric, or because a butterfly flew in Madrid. It’s not due to the Big Bang. It’s not due to her asymmetrical vertebrae, like river stones in her spine. It’s not the PH of the ocean or the position of the tectonic plates. And it’s not her horoscope or her numerology or the color of the stone I might have carried in my pocket while pregnant. It’s not to inspire you. It’s not to make you feel sad or big. It’s not to be a weight I carry, the “more” that God gives so I can “handle” it. It’s not to be healed by Jesus. The reason she exists is the same reason you do: Because.

[Image description: Fiona from the chest up, grinning, looking off in the distance. A green field and trees are behind her. Someone is holding her hands. She's wearing a straw hat.]

[Image description: Fiona from the chest up, grinning, looking off in the distance. A green field and trees are behind her. Someone is holding her hands. She’s wearing a straw hat.]

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3 thoughts on “On the Why of Disability

  1. Thank you for this post. I think too many people try to make sense of “different,” and I like how you don’t rationalize your daughters existence. Why would a human being be meant for another persons gain? The reason things happen; because…love that and going to start using that when I get comments. This post has helped me.

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